Mayo Clinic offers award-winning medical and health information and tools for healthy living.

Genetics Home Reference (GHR) provides free access to consumer-friendly information on medical genetics to patients and their family members, health care professionals, and the public. The site offers summaries for a broad range of inherited conditions or disorders caused by gene alterations. Each condition summary includes the causes, available genetic testing, and links to summaries on related

The eMedicine point-of-care clinical reference features up-to-date, searchable, peer-reviewed medical articles organized in specialty-focused textbooks, and is continuously updated with practice-changing evidence culled daily from the medical literature.

A women with RDEB offers helpful, in depth info about the severe genetic skin disorder Epidermolysis Bullosa. Includes medical care, recipes, links, research updates, support group information and much more. This site is for EB patients, their families, friends and those just wanting to learn a little bit about the Butterfly Children!

The Epidermolysis Bullosa (“EB”) Action Network is a nonprofit charitable organization committed to accomplishing the following objectives:  To serve and revitalize the EB community with integrity and determination; To take action wherever needed to modify public policies that impact the lives of EB sufferers; To work as an advocate for EB sufferers and affected families to improve their quality

The National Library of Medicine (NLM), on the campus of NIH in Bethesda, Maryland, is the world's largest medical library. It collects materials in all major areas of the health sciences and to a lesser degree in such areas as chemistry, physics, botany and zoology. The collections stand at 5 million items--books, journals, technical reports, manuscripts, microfilms, photographs and images. Hous

The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments, and ultimately, its cure.