Mayo Clinic offers award-winning medical and health information and tools for healthy living.

Genetics Home Reference (GHR) provides free access to consumer-friendly information on medical genetics to patients and their family members, health care professionals, and the public. The site offers summaries for a broad range of inherited conditions or disorders caused by gene alterations. Each condition summary includes the causes, available genetic testing, and links to summaries on related genes. Descriptions of genes include gene names and their synonyms, normal function, chromosome location, and an explanation of any disorder-causing mutations. Additionally, GHR provides a genetics glossary, help on understanding genetics, and links to many useful consumer, support, and research organizations. GHR is a service of the U.S. National Library of Medicine at the National Institutes of Health.

A women with RDEB offers helpful, in depth info about the severe genetic skin disorder Epidermolysis Bullosa. Includes medical care, recipes, links, research updates, support group information and much more. This site is for EB patients, their families, friends and those just wanting to learn a little bit about the Butterfly Children!

NR Supporting the Epidermolysis Bullosa Community | ebnurse | Epidermolysis Bullosa is a genetic disorder that results in fragility of the skin and, in some cases, other organs. Blisters and/or erosions form as a result of friction, rubbing or trauma. In some instances, blisters and/or erosions occur spontaneously.

The National Library of Medicine (NLM), on the campus of NIH in Bethesda, Maryland, is the world's largest medical library. It collects materials in all major areas of the health sciences and to a lesser degree in such areas as chemistry, physics, botany and zoology. The collections stand at 5 million items--books, journals, technical reports, manuscripts, microfilms, photographs and images. Housed within the Library is one of the world's finest medical history collections of old (pre-1914) and rare medical texts, manuscripts, and incunabula.

The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments, and ultimately, its cure.